Join Us For Hockey Night Fundraiser With The Manchester Monarchs

The Second Wind Foundation for Pulmonary Fibrosis will hold annual hockey night fundraiser on Feb. 7th 2015,
coinciding  with the Monarchs “Pink in the Rink.”

monarchs

Are you ready for some bone crushing hits, blue line slapshots, and professional hockey right here in Manchester?  Look no further than the Manchester Monarchs.  New Hampshire’s own pink-in-the-rinksemi-pro hockey team provides NHL level hockey without all the hassle of driving into Boston.

The Second Wind Foundation for Pulmonary Fibrosis has teamed up with the Manchester Monarchs for an exciting fundraiser. Not only do you get you watch great hockey but every ticket sold donates $8 to the Second Wind Foundation.  The Second Wind Foundation will also be the recipient of 1/2 the proceeds from tickets sold for the Monarchs Hockey Shirt Raffle the night of the game.

1209-man-pinkJoin us on Saturday February 7th, 2014 as we cheer on the Monarchs against the Providence Bruins.  This year we have teamed up with the Manchester Monarchs for “Pink In The Rink” night. This annual event is one of the highlights of the Monarchs season where they dye the entire rink pink in honor of Breast Cancer Awareness.  Tickets for this annual game are a very hot commodity so be sure to get your tickets today!

Tickets are just $20 per person.  With every ticket you get to ‘Chuck – a- Puck’ for a chance to win great Monarchs prizes! Also, 3 people will be randomly drawn to go an meet the players after the game.

manchester_monarchs_2002Last year we had over 125 people join us for this great event.  This year we are looking to sell 250 tickets, so be sure to invite your friends.  You can purchase tickets via paypal (below) or by calling Ron at (603) 396-9535.

If you need more information you can email us at Events@SecondWindforPF.com

We hope to see you at the game.

Do not forget to get your Second Wind T-Shirt before the game!

 

To buy tickets, click ADD TO CART. A new window will open and you will need to enter the number of tickets you would like to purchase.


Tickets are $20 each.



Great Weather Predicted For This Weekends “Give A Gift Of Breath” Motorcycle Ride

Motorcycle (Maurice CC FLIKR)Motorcycle Riders Cruise Through Central New Hampshire For A Good Cause 

The Second Wind Foundation for Pulmonary Fibrosis Hosts annual “Give A Gift Of Breath” ride to help raise money for patient support and research.

(Hooksett,NH) This Saturday is expected to be a perfect September day in New Hampshire, and riders from all across the region are expected to take part in the “Give A Gift Of Breath” motorcycle ride to benefit The Second Wind Foundation for Pulmonary Fibrosis.

“Saturday is predicted to be a perfect day for a motorcycle ride,” said Ron Geoffroy, President of the Second Wind Foundation for Pulmonary Fibrosis.   “With the addition of live music by the Rik-Sha Band, and food provided by the Puritan Backroom, this could be our biggest ride to date.”

Pulmonary Fibrosis is a rare lung disease that creates scar tissue inside the lungs, making it harder and harder to breathe.   Pulmonary Fibrosis currently effects more than 500,000 people in the US.

The annual ride brings in much needed donations that are used to fund ongoing research, like the “Pirfenidone” drug trials.  The donations also go to our new “Breathe Easy” program that provides monetary support for families who are suffering with Pulmonary Fibrosis.  The Second Wind Foundation provides qualifying families with gas cards to ease the cost of multiple visits to pulmonary specialists.

The ride kicks off from the Plumbers and Pipefitters Hall, 161 Londonderry Turnpike, Hooksett, NH at 10:30 am.  The cost is $25 per motorcycle, and $10 per additional rider. Registration starts at 8 am.

After the two-hour scenic New Hampshire ride, feast on lunch provided by The Puritan Backroom, and enjoy live rockabilly-blues music from the Rik-Sha Band.  There will also be silent auctions and raffles for great prizes from local restaurants and shops.

“We look forward to seeing everyone Saturday morning for the Give A Gift of Breath motorcycle ride,” added Geoffroy.


Bikes and Riders



FDA Holds Public Meeting On Idiopathic Pulmonary Fibrosis Patient-Focused Drug Development

FDA LOGO
On September 26, 2014, FDA is conducting a public meeting on Idiopathic Pulmonary Fibrosis Patient-Focused Drug Development.

Date:                September 26, 2014

Time:               1:00 a.m. to 5:00 p.m.

Location:         FDA White Oak Campus

10903 New Hampshire Ave.

Building 31 Conference Center, The Great Room (Rm 1503)

Silver Spring, MD 20993

FDA is interested in obtaining patient input on symptoms and daily impacts that matter most to patients (topic 1), and current available approaches to treat idiopathic pulmonary fibrosis (topic 2). The questions for discussion on these topics are below.

For each of these topics, a panel of patients and patient representatives/advocates will present comments to begin the dialogue and will be followed by a facilitated discussion inviting comments from all patients and patient representatives in the audience.

If you are interested in providing comments as part of the initial panel discussion, indicate so during the registration process. Panelists will be confirmed prior to the meeting.

There will also be an opportunity for patients, patient representatives and others to provide comments on issues other than topics 1 and 2 during an Open Public Comment session. Sign up for Open Public Comment will take place the day of the meeting.

Webcast participants will also have an opportunity to provide input through webcast comments.

For more information, refer to the FDA meeting website at: http://www.fda.gov/ForIndustry/UserFees/PrescriptionDrugUserFee/ucm395774.htm

Questions for Discussion

Topic 1: Disease signs, symptoms and daily impacts that matter most to patients

1)    Of all the symptoms that you experience because of the condition, which 1-3 symptoms have the most significant impact on your life? (Examples may include shortness of breath, cough, fatigue, etc.)

2)    Are there specific activities that are important to you but that you cannot do at all or as fully as you would like because of your condition? (Examples of activities may include household chorse, walking up the stairs, etc.)

a)    How do your symptoms and their negative impacts affect your daily life on the best days? On the worst days?

3)    How has your condition and its symptoms changed over time?

Topic 2: Patient perspectives on current approaches to treating idiopathic pulmonary fibrosis

1)    What are you currenty doing to help treat the condition or its symptoms? (Examples may include prescription medicines, over-the-counter products, and other therapies including non-drug therapies such as diet modification.)

a) How well does your current treatment regimen treat the most significant symptoms of your diease?

2)    What are the most significant downsides to your current treatments and how do they affect your daily life? (Examples of downsides may include bothersome side effects, going to the hospital for treatment, etc.)

3)    Because there is no complete cure for your condition, what specific things would you look for in an ideal treatment for your condition?

SIGN UP

Click here to sign up to attend in person or via webcast

The Second Wind Foundation For Pulmonary Fibrosis Proudly Announces The “Breathe Easy” Program To Help Families Suffering From Pulmonary Fibrosis

For Immediate Release

The Second Wind Foundation For Pulmonary Fibrosis Proudly Announces The “Breathe Easy” Program To Help Families Suffering From Pulmonary Fibrosis 

The Second Wind Foundation to provide gas cards to families who are suffering from Pulmonary Fibrosis.

Filling Gas Tank (KOMUnews CC Flikr)Auburn, NH – The Second Wind Foundation for Pulmonary Fibrosis proudly announces the start of a new program designed to help families who are suffering from Pulmonary Fibrosis.

Pulmonary Fibrosis is a rare lung disease that creates scar tissue inside the lungs, making it harder and harder to breathe.   Pulmonary Fibrosis currently effects more than 500,000 people in the US.  After being diagnosed with Pulmonary Fibrosis, patients must meet with their doctors regularly to monitor their condition.  The increase in doctor visits, home healthcare, and oxygen tanks put a significant financial strain on patients and their families.

Ron and Marylou Geoffroy started the Second Wind Foundation for Pulmonary Fibrosis, after Marylou was diagnosed with Pulmonary Fibrosis.

“As Marylou’s condition deteriorated, we were traveling to Boston for doctors appointments a few times a month,” said Ron Geoffroy President of the Second Wind Foundation for Pulmonary Fibrosis. “This is exactly why we started the ‘Breathe Easy’ program, to give some monetary support to families suffering from Pulmonary Fibrosis.”

To help families deal with the financial strains that a chronic disease can have, the Second Wind Foundation for Pulmonary Fibrosis created the Breathe Easy program to provide $50 gas cards to qualified recipients.

The Breathe Easy program is open to anyone who suffers from Pulmonary Fibrosis or for those who are caring for someone with PF.  The Breathe Easy application can be downloaded at http://secondwindforpf.com/breathe-easy-program/.

Right now there is no cure for Pulmonary Fibrosis, and thanks to donations from the Second Wind Foundation for Pulmonary Fibrosis, new research is helping to find a cure.

To help raise money for this new program the Second Wind Foundation is hosting a charity motorcycle ride this September. The “Give A Gift Of Breath” motorcycle ride will be held on September 13th 2014 and begins at the Plumbers and Pipefitters Hall, 161 Londonderry Turnpike, Hooksett, NH.

Enjoy a scenic ride through the tree-lined roads of central New Hampshire, and then enjoy some great food courtesy of the Puritan Back Room.

Registration for the ride begins at 8:00 am with kickstands up at 10:30 a.m.  The cost is only $25 per bike and $10 for additional riders.

“The Give a Gift of Breath motorcycle ride is one of our biggest annual fundraisers for the Second Wind Foundation,” said Geoffroy. “To encourage people to sign up early for the ride, we are offering a $5 discount if you register now.”

For more information about the Second Wind Foundation for Pulmonary Fibrosis, and to register for our upcoming ride, go to http://secondwindforpf.com/.

Register For The “Give A Gift Of Breath” Motorcycle Ride 2014

Motoride2013010
The Second Wind Foundation for Pulmonary Fibrosis is proud to announce the second annual “Give A Gift Of Breath” motorcycle ride.  

The ride is on September 13th 2014 and begins at
the Plumbers and Pipefitters Hall
161 Londonderry Turnpike, Hooksett. 

Registration begins at 8am and kickstands up at 10:30am.

The cost is $25 dollars per bike and $10 per additional rider.
All proceeds go to the Second Wind Foundation.

After the scenic ride, enjoy some great food from the Puritan Backroom 
(special thanks to Chris Pappas owner of the Puritan Backroom, for sponsoring the event).

  There will also be entertainment and fellowship.

JUST ANNOUNCED
Rik-Shaw Band will be playing after the ride! 
Click Here to read more about them. 


Bikes and Riders




2014 SW4PF Ride Flyer (PNG)

Click here to download a PDF version of this flyer
to print and share with your friends and co-workers. 

The event is now being featured at MotorcycleMonster.com

Motorcycle Rally Calendar

16 Local Businesses To Participate in “The Second Wind Foundation For Pulmonary Fibrosis Awareness” Week

Auburn, NH — Local businesses in Auburn and Manchester will support the Second Wind Foundation For Pulmonary Fibrosis by Participating in “The Second Wind Foundation For Pulmonary Fibrosis Awareness” week starting on May 10th – 17th.  Businesses will sell paper doves and display them for the week.  The annual charity fundraiser brings in much needed funds to help support families suffering from Pulmonary Fibrosis and to fund research for a cure.

What: “The Second Wind Foundation For Pulmonary Fibrosis Awareness” Week

When: May 10- May 17 

Contact: If a business would like to participate they may contact Ron Geoffroy at Info@SecondWindForPF.com.

Pulmonary Fibrosis is a rare lung disease that creates scar tissue inside the lungs, making it harder and harder to breath. Right now there is no cure for Pulmonary Fibrosis, and thanks to donations from the Second Wind Foundation, new research is helping to find a cure.  Pulmonary Fibrosis affects 500,000 people in the US.  Nearly 40,000 people will loose their battle with Pulmonary Fibrosis this year.

Ron and Marylou Geoffroy started the Second Wind Foundation, after Marylou was diagnosed with Pulmonary Fibrosis. They started the foundation to help raise awareness to a relatively unknown disease, and to help raise money for research.

“Our hope is that walls of these local shops will be covered with doves, showing strong support for those who suffer from Pulmonary Fibrosis,” said Ron Geoffroy President of the Second Wind Foundation for Pulmonary Fibrosis.  “Raising awareness to this rare and debilitating disease is one of the Second Wind Foundation’s primary goals.”

Last year the Second Wind Foundation for Pulmonary Fibrosis donated thousands of dollars to the Massachusetts General Hospital Tager Laboratories who are conducting research for find a cure for Pulmonary Fibrosis.

Below is a list of local shops participating in this years “Second Wind Foundation For Pulmonary Fibrosis Awareness” week:

MacPherson Hair Salon                    7 Raymond Rd.                      Auburn

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Auburn Supermarket                       6 Chester Rd                          Auburn

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Luoko’mammas                                 15 Chester Rd                                   Auburn

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Turnpike Pizza                                  903 Londonderry Tpke        Auburn

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Acme Glass                                         87 Priscilla Lane                    Auburn

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Hair Game                                          425 Candia Rd                      Manchester

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Zoey’s Pizza & Calzones                    2160 Candia Road                Manchester

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Sandy’s Variety                                 2281 Candia Rd                    Manchester

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Lakeside Lanes                                  2171 Candia Rd                    Manchester

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MoeJoe’s Faimily Restaurant           2175 Candia Rd                    Manchester

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Granite State Collision                      71 Sinclair Ave.                      Manchester

D’s Hair Design                                  747 Hooksett Road               Auburn

Manchester Auto Glass                     1225 Hanover St                   Manchester

Candia Auto Repair                           220 Candia Rd                      Manchester

Revive salon and spa                          1 1/2 E Broadway                Derry

Namaste Montessori School             535 Mast Rd                          Goffstown

 

# # #

 The Second Wind Foundation for Pulmonary Fibrosis is a 501C3 non-profit charitable organization that helps to raise awareness, provide funding for research, and help families who suffer from Pulmonary Fibrosis. More information about the Second Wind Foundation and Pulmonary Fibrosis can be found on our website, http://secondwindforpf.com.  Tax deductible donations can be made at http://secondwindforpf.com/about/make-a-donation/

 

The Second Wind Foundation To Sell “Doves” At Local Shops To Bring Awareness To Pulmonary Fibrosis

SWDove CropDuring the week of May 10th -17th, the Second Wind Foundation for Pulmonary Fibrosis will be working with businesses in the Manchester and Auburn area to bring awareness to the rare and debilitating disease known as Pulmonary Fibrosis.

This is the second annual “Second Wind for Pulmonary Fibrosis Awareness Week,” and we hope to double our fundraising efforts from last years event.

Pulmonary Fibrosis is a rare lung disease that creates scar tissue inside the lungs, making it harder and harder to breath.  One of our main goals of the Second Wind Foundation is to education the public about this disease by raising money to help with awareness, research and support families suffering from Pulmonary Fibrosis.

Local businesses will be selling paper “Doves” for $1.00 and then will post your name and your message of support for everyone to see.   Our hope is that walls of these local shops will be covered with doves, showing strong support for those who suffer from Pulmonary Fibrosis.

Local shops and restaurants will be posting the below flyer on their door.  (If you have a business in Manchester’s Ward 6 or in Auburn and would like to take part in our event, contact Ron Geoffroy at Info@SecondWindforPF.com.)

Look for these signs and help support the Second Wind Foundation for Pulmonary Fibrosis.    We will be updating this post as local businesses agree to take part in the event.

dove event FINAL PNG

Please help us in finding a cure for Pulmonary Fibrosis by purchasing a dove any time you enter these businesses

 Businesses Currently participating on the Dove Event:

Zoey’s Pizza – 2160 Candia Rd., Manchester

MacPherson Hair Salon – 7 Raymond Rd., Auburn

D’s Hair Design – 747 Hooksett Rd., Auburn

Louko’mammas – 15 Chester Rd., Auburn

Candia Rd. Auto – 220 Candia Rd., Manchester.

Granite State Collision – 71 Sinclair Ave., Manchester

Revive Salon – 1.5 East Broadway Rd., Derry

Namaste School – 535 Mast Rd., Goffstown

Acme Glass – 87 Priscilla Lane, Auburn

Hair Game, 425 Candia Rd. Manchester.

Auburn Supermarket, 6 Chester Rd, Auburn

Turnpike Pizza,  903 Londonderry Turnpike, Auburn

Manchester Auto Glass, 1224 Hanover St., Manchester

Sandy’s Variety, 2281 Candia Rd., Manchester

Lakeside Lanes, 2171 Candia Rd., Manchester

 

Thank You For Making Our First Annual Motorcycle Ride A Success!

Motoride2013022The Second Wind Foundation for Pulmonary Fibrosis conducted its 1st Annual Motorcycle Ride to help raise needed funding for research for a cure to Pulmonary Fibrosis.  Thank you to the many people who came out to support our cause, especially the Ed Brown family and friends.  A special thank you to Moe Joe’s Restaurant for being the host of our event.  

The New Hampshire State Police Motorcycle unit sent two motorcycle officers to escort our ride.  Officer Aaron Richards and Officer Brian Ross were extremely helpful in allowing our ride to be safe, and we thank the New Hampshire State Police for their assistance.

 Our fundraising efforts could not have been as successful without the help of the many organizations that donated:

  •  Moe Joe’s Restaurant – Sponsor to the event
  • Manchester Monarchs
  • Nadeau Subs
  • Hair Game
  • Giovanni’s Pizza
  • T-Bones
  • DerryField Restaurant
  • Goldenrod’s
  • Zoeys
  • Nelson Auto
  • Revive Salon

It is without saying that all this could have not been accomplished without the many hours of hard work by members of the Second Wind Foundation board and the many volunteers who worked with us during our event in order to make this a successful fundraiser.  We hope to see you next year at our 2nd annual Second Wind Foundation for PF Motorcycle Ride 2014.

Ron Geoffroy
President 

 

Thank You Yogis For Supporting The Second Wind Foundation


yoga-meditation-2
In May the Second Wind Foundation for Pulmonary Fibrosis celebrated ‘Give the Gift of Breath Week’ with a fundraiser at local yoga studios.  Yoga relies on deep concentration and controlled breathing.  For those with Pulmonary Fibrosis breathing can be extremely difficult.  

Durning the week long event local yoga studio’s sold Second Wind Doves with all proceeds going to the Second Wind Foundation.  We raised $238 dollar that week and every dollar helps.  

101_4370We would like to say a special thank you to the studios who helped us raise money for Pulmonary Fibrosis.

  • Open Space Yoga – Nashua  NH
  • Nahar Yoga – Derry
  • SS Yoga – Hudson
  • Dragon Fly Yoga – Sandwich
  • Amala Wellness – Goffstown
  • White Swan Yoga – Manchester

We look forward to working with these studios and others in the future.

SS Yoga Group photo