The Second Wind Foundation Donates $5,000 To Massachusetts General Hospital To Further Research On Pulmonary Fibrosis

Second Wind Foundation for Pulmonary Fibrosis President Ron Geoffroy and Dr Tager Others in the photo: Katharine Black, MD Rachel Knipe, MD David Lagares, MD  Neil Ahluwalia, MD  Flavia Castelino, MD  Veronica Pace, MD Paula Grasberger, MD

Second Wind Foundation for Pulmonary Fibrosis President Ron Geoffroy and Dr Tager
Others in the photo: Katharine Black, MD Rachel Knipe, MD David Lagares, MD Neil Ahluwalia, MD Flavia Castelino, MD Veronica Pace, MD Paula Grasberger, MD

(Manchester, NH) This week Ron Geoffroy, President of the Second Wind Foundation for Pulmonary Fibrosis, delivered a check for $5,000 to Dr Tager, who accepted the check on behalf of the Massachusetts General Hospital. Massachusetts General Hospital is well known throughout the country for their cutting edge research on Pulmonary Fibrosis.

Pulmonary Fibrosis is a rare lung disease that creates scar tissue inside the lungs, making it harder and harder to breathe.   Pulmonary Fibrosis currently effects more than 500,000 people in the US.

“We are deeply appreciative of all that the Second Wind Foundation is doing to raise awareness of pulmonary fibrosis and to advance our research in pursuit of new treatments for this devastating disease,” said Dr Tager. “Philanthropic support is vital to ensuring that our team of researchers at Mass General can explore multiple avenues toward discoveries that can improve the lives of countless patients and their families. I can’t thank Ron, the board members and all of the Second Wind Foundation supporters enough for their generosity.”

Second Wind Foundation for Pulmonary Fibrosis President Ron Geoffroy and Dr Tager

Second Wind Foundation for Pulmonary Fibrosis President Ron Geoffroy and Dr Tager

“In particular, our laboratory will use the funds so generously provided by the Second Wind Foundation to support the research we do with the diseased lungs of patients with pulmonary fibrosis who receive lung transplants.  After these lungs are removed as part of the transplant procedure, they provide us with an invaluable window into how pulmonary fibrosis progresses to the point where it becomes life-threatening,” concluded Dr. Tager.

“We are proud to be presenting this $5,000 check to Massachusetts General Hospital for their work and support for those who suffer from Pulmonary Fibrosis,” said Ron Geoffroy, President of the Second Wind Foundation for Pulmonary Fibrosis.  “One day, we will find a cure for Pulmonary Fibrosis, and it could be from research being conducted at Massachusetts General Hospital.”

This is the third year in a row that the Second Wind Foundation has donated to Massachusetts General Hospital specifically for research on Pulmonary Fibrosis.  The Second Wind Foundation was able to make this donation thanks to generous private donations and fundraisers like our annual “Hockey Night” fundraiser with the Manchester Monarchs coming up on Feb. 7th.  To purchase tickets to the Manchester Monarchs “Pink in the Rink” hockey game through the Second Wind Foundation go to http://secondwindforpf.com/2014/10/join-us-for-hockey-night-fundraiser-with-the-manchester-monarchs/.

For more information on the Second Wind Foundation for Pulmonary Fibrosis go to http://secondwindforpf.com/.

 

The Second Wind Foundation For Pulmonary Fibrosis

Ron and MaryLou Geoffroy started The Second Wind Foundation for Pulmonary Fibrosis in 2010 after MaryLou was diagnosed with Pulmonary Fibrosis.  They struggled to find information and support for people with PF. Ron and MaryLou started the foundation because they wanted to help raise awareness and money to support continued research for this unknown disease.  The Second Wind Foundation for Pulmonary Fibrosis continues to educate the public about this rare but deadly disease, raise money for research and to help families suffering with PF.

Ron Geoffroy continues to lead the Second Wind Foundation in loving memory of his late wife.

RELEASE: The Second Wind Foundation For Pulmonary Fibrosis Teams Up With The Manchester Monarchs For Hockey Night Fundraiser

cropped-Second-Wind-Foundation-Final-Copy-1-e1359993411518.jpgImmediate Release
Contact Ron Geoffroy
Info@SecondWindforPF.com

(Auburn, NH) – The Second Wind Foundation for Pulmonary Fibrosis has once again teamed up with the Manchester Monarchs for a hockey night fundraiser.

The Second Wind Foundation is selling tickets to the Monarchs annual “Pink In The Rink” game on February 7th , against the Providence Bruins. Tickets can be purchased for $20 dollars with $8.00 from each ticket going directly to the Second Wind Foundation for Pulmonary Fibrosis.

The “Pink in the Rink” night is a very special night for the Manchester Monarchs and Catholic Medical Center, as a portion of each ticket sold will be given directly to CMC. Last year the Monarchs and CMC raised over $10,000 in ticket sales and raffles. If you get your tickets from the Second Wind Foundation you will be able to support two great causes.

Pulmonary Fibrosis is a rare lung disease that creates scar tissue inside the lungs, making it harder and harder to breathe.   Pulmonary Fibrosis currently effects more than 500,000 people in the US.

The annual fundraiser brings in much needed donations that are used to fund ongoing research, like the “Pirfenidone” drug trials. The donations also go to our new “Breathe Easy” program that provides monetary support for families who are suffering with Pulmonary Fibrosis. The Second Wind Foundation provides qualifying families with gas cards to ease the cost of multiple visits to pulmonary specialists.

This year the Second Wind Foundation donated $5,000 to the Massachusetts General Hospital for their ground-breaking research on Pulmonary Fibrosis.

“Our annual hockey night fundraiser is one of my favorite events,” said Ron Geoffroy, President of the Second Wind Foundation for Pulmonary Fibrosis. “This is a great opportunity for families to enjoy professional level hockey while supporting two great causes.”

For more information and to purchase tickets go to http://secondwindforpf.com/.

The Second Wind Foundation For Pulmonary Fibrosis 

Ron and MaryLou Geoffroy started The Second Wind Foundation for Pulmonary Fibrosis in 2010 after MaryLou was diagnosed with Pulmonary Fibrosis. They struggled to find information and support for people with PF. Ron and MaryLou started the foundation because they wanted to help raise awareness and money to support continued research for this unknown disease. The Second Wind Foundation for Pulmonary Fibrosis continues to educate the public about this rare but deadly disease, raise money for research and to help families suffering with PF. 

Ron Geoffroy continues to lead the Second Wind Foundation in loving memory of his late wife.

Join Us For Hockey Night Fundraiser With The Manchester Monarchs

The Second Wind Foundation for Pulmonary Fibrosis will hold annual hockey night fundraiser on Feb. 7th 2015,
coinciding  with the Monarchs “Pink in the Rink.”

monarchs

Are you ready for some bone crushing hits, blue line slapshots, and professional hockey right here in Manchester?  Look no further than the Manchester Monarchs.  New Hampshire’s own pink-in-the-rinksemi-pro hockey team provides NHL level hockey without all the hassle of driving into Boston.

The Second Wind Foundation for Pulmonary Fibrosis has teamed up with the Manchester Monarchs for an exciting fundraiser. Not only do you get you watch great hockey but every ticket sold donates $8 to the Second Wind Foundation.  The Second Wind Foundation will also be the recipient of 1/2 the proceeds from tickets sold for the Monarchs Hockey Shirt Raffle the night of the game.

1209-man-pinkJoin us on Saturday February 7th, 2014 as we cheer on the Monarchs against the Providence Bruins.  This year we have teamed up with the Manchester Monarchs for “Pink In The Rink” night. This annual event is one of the highlights of the Monarchs season where they dye the entire rink pink in honor of Breast Cancer Awareness.  Tickets for this annual game are a very hot commodity so be sure to get your tickets today!

Tickets are just $20 per person.  With every ticket you get to ‘Chuck – a- Puck’ for a chance to win great Monarchs prizes! Also, 3 people will be randomly drawn to go an meet the players after the game.

manchester_monarchs_2002Last year we had over 125 people join us for this great event.  This year we are looking to sell 250 tickets, so be sure to invite your friends.  You can purchase tickets via paypal (below) or by calling Ron at (603) 396-9535.

If you need more information you can email us at Events@SecondWindforPF.com

We hope to see you at the game.

Do not forget to get your Second Wind T-Shirt before the game!

 

To buy tickets, click ADD TO CART. A new window will open and you will need to enter the number of tickets you would like to purchase.


Tickets are $20 each.



FDA Holds Public Meeting On Idiopathic Pulmonary Fibrosis Patient-Focused Drug Development

FDA LOGO
On September 26, 2014, FDA is conducting a public meeting on Idiopathic Pulmonary Fibrosis Patient-Focused Drug Development.

Date:                September 26, 2014

Time:               1:00 a.m. to 5:00 p.m.

Location:         FDA White Oak Campus

10903 New Hampshire Ave.

Building 31 Conference Center, The Great Room (Rm 1503)

Silver Spring, MD 20993

FDA is interested in obtaining patient input on symptoms and daily impacts that matter most to patients (topic 1), and current available approaches to treat idiopathic pulmonary fibrosis (topic 2). The questions for discussion on these topics are below.

For each of these topics, a panel of patients and patient representatives/advocates will present comments to begin the dialogue and will be followed by a facilitated discussion inviting comments from all patients and patient representatives in the audience.

If you are interested in providing comments as part of the initial panel discussion, indicate so during the registration process. Panelists will be confirmed prior to the meeting.

There will also be an opportunity for patients, patient representatives and others to provide comments on issues other than topics 1 and 2 during an Open Public Comment session. Sign up for Open Public Comment will take place the day of the meeting.

Webcast participants will also have an opportunity to provide input through webcast comments.

For more information, refer to the FDA meeting website at: http://www.fda.gov/ForIndustry/UserFees/PrescriptionDrugUserFee/ucm395774.htm

Questions for Discussion

Topic 1: Disease signs, symptoms and daily impacts that matter most to patients

1)    Of all the symptoms that you experience because of the condition, which 1-3 symptoms have the most significant impact on your life? (Examples may include shortness of breath, cough, fatigue, etc.)

2)    Are there specific activities that are important to you but that you cannot do at all or as fully as you would like because of your condition? (Examples of activities may include household chorse, walking up the stairs, etc.)

a)    How do your symptoms and their negative impacts affect your daily life on the best days? On the worst days?

3)    How has your condition and its symptoms changed over time?

Topic 2: Patient perspectives on current approaches to treating idiopathic pulmonary fibrosis

1)    What are you currenty doing to help treat the condition or its symptoms? (Examples may include prescription medicines, over-the-counter products, and other therapies including non-drug therapies such as diet modification.)

a) How well does your current treatment regimen treat the most significant symptoms of your diease?

2)    What are the most significant downsides to your current treatments and how do they affect your daily life? (Examples of downsides may include bothersome side effects, going to the hospital for treatment, etc.)

3)    Because there is no complete cure for your condition, what specific things would you look for in an ideal treatment for your condition?

SIGN UP

Click here to sign up to attend in person or via webcast

The Second Wind Foundation For Pulmonary Fibrosis Proudly Announces The “Breathe Easy” Program To Help Families Suffering From Pulmonary Fibrosis

For Immediate Release

The Second Wind Foundation For Pulmonary Fibrosis Proudly Announces The “Breathe Easy” Program To Help Families Suffering From Pulmonary Fibrosis 

The Second Wind Foundation to provide gas cards to families who are suffering from Pulmonary Fibrosis.

Filling Gas Tank (KOMUnews CC Flikr)Auburn, NH – The Second Wind Foundation for Pulmonary Fibrosis proudly announces the start of a new program designed to help families who are suffering from Pulmonary Fibrosis.

Pulmonary Fibrosis is a rare lung disease that creates scar tissue inside the lungs, making it harder and harder to breathe.   Pulmonary Fibrosis currently effects more than 500,000 people in the US.  After being diagnosed with Pulmonary Fibrosis, patients must meet with their doctors regularly to monitor their condition.  The increase in doctor visits, home healthcare, and oxygen tanks put a significant financial strain on patients and their families.

Ron and Marylou Geoffroy started the Second Wind Foundation for Pulmonary Fibrosis, after Marylou was diagnosed with Pulmonary Fibrosis.

“As Marylou’s condition deteriorated, we were traveling to Boston for doctors appointments a few times a month,” said Ron Geoffroy President of the Second Wind Foundation for Pulmonary Fibrosis. “This is exactly why we started the ‘Breathe Easy’ program, to give some monetary support to families suffering from Pulmonary Fibrosis.”

To help families deal with the financial strains that a chronic disease can have, the Second Wind Foundation for Pulmonary Fibrosis created the Breathe Easy program to provide $50 gas cards to qualified recipients.

The Breathe Easy program is open to anyone who suffers from Pulmonary Fibrosis or for those who are caring for someone with PF.  The Breathe Easy application can be downloaded at http://secondwindforpf.com/breathe-easy-program/.

Right now there is no cure for Pulmonary Fibrosis, and thanks to donations from the Second Wind Foundation for Pulmonary Fibrosis, new research is helping to find a cure.

To help raise money for this new program the Second Wind Foundation is hosting a charity motorcycle ride this September. The “Give A Gift Of Breath” motorcycle ride will be held on September 13th 2014 and begins at the Plumbers and Pipefitters Hall, 161 Londonderry Turnpike, Hooksett, NH.

Enjoy a scenic ride through the tree-lined roads of central New Hampshire, and then enjoy some great food courtesy of the Puritan Back Room.

Registration for the ride begins at 8:00 am with kickstands up at 10:30 a.m.  The cost is only $25 per bike and $10 for additional riders.

“The Give a Gift of Breath motorcycle ride is one of our biggest annual fundraisers for the Second Wind Foundation,” said Geoffroy. “To encourage people to sign up early for the ride, we are offering a $5 discount if you register now.”

For more information about the Second Wind Foundation for Pulmonary Fibrosis, and to register for our upcoming ride, go to http://secondwindforpf.com/.

The Second Wind Foundation For Pulmonary Fibrosis Announces “Breathe Easy” Program To Support Families With PF

A program of Support for Families
From The Second Wind Foundation for Pulmonary Fibrosis

The program is designed to provide support for families affected by Pulmonary Fibrosis.  It’s understood that the program is not all encompassing, however with additional resources the organization can continue to expand the program to include other aspects of assistance.

As an introduction to the program, initially we will provide a $50 gas gift card to each viable applicant that requests assistance through the application process.  Applications will be submitted to a 3-person subcommittee who will review all applications for their viability.

The following will be, but not limited to,  items of information that will be necessary for the subcommittee to approve patients for the program.  This information is to be completed by the applicant or caregiver.  It may be necessary for the Second Wind Foundation to contact applicants to request additional information.  Submittal of the application is approval for the organization to contact you.

Click here to download an application

More information on the program can be found here, or by clicking the Breathe Easy tab in the top menu bar.

Carol’s Story Of Living With Pulmonary Fibrosis: It All Started With Trouble Breathing

Quilting (Image by Gina Pina)

One of Carol’s favorite activities is quilting.
Image by Gina Pina FLIKR

Carol is a 65 year old female, who has never smoked, has no family history of any lung disease, has never had any type of ailments relating to lungs, and did not have any breathing issues prior to 2013. In May of 2013, she found herself having difficulty breathing when climbing stairs. She made an appointment to see her doctor. The doctor suggested the cause could be lung related. A chest x-ray was the first step in the diagnosis.

After reviewing the chest x-ray, the doctor recommended that she see a pulmonologist. The pulmonologist put Carol through a regiment of tests, CT, EKG and a Pulmonary Function Test (PFT). After all these test the pulmonologist diagnosed Interstitial Pulmonary Fibrosis (IPF). Carol and her husband were shocked. Carol had never smoked, never worked in any environment that would have caused an injury to her lungs, and never had any type of lung issues at all.

What we do know about IPF is that there is no root cause to this disease. As with many of the people that have IPF, there is no one factor that stands out among IPF patients. Some IPF patients have a history of having been in potentially toxic conditions that could cause an injury to the lungs, yet others like Carol, have never even been sick with any lung type illnesses. This is the very difficult part of understanding Pulmonary Fibrosis.

The pulmonologist suggested Carol undergo a lung biopsy to confirm the diagnosis. She and her husband had a trip planned within the upcoming weeks. They felt as though they should go on the trip and wait for Carol to have the biopsy when they returned. In June of 2013 Carol underwent the biopsy and it did confirm that she had Interstitial Pulmonary Fibrosis.

In the past year Carol has been very aware of her disease. As it has impacted her life she has made changes where needed. Carol has learned to do many of the same things she did before, however taking a bit more time so that she can maintain an adequate level of breathing. She is very active with grandchildren, exercising, and involved in the community.

Recently, Carol has felt as though the fibrosis is progressing. During one of her pulmonary rehab sessions, her oxygen levels dropped a bit which concerned the specialist. Her pulmonologist suggested that it may be time for her begin the use of oxygen when she is exerting herself. She will be undergoing another PFT, which will help to determine if there is a need for supplemental oxygen and if so what level of oxygen she would need during exercise.

As with many IPF patients, Carol, seems to be understanding of her condition and is weighing all the options. She continues with life’s daily activities, enjoying her grandchildren, and takes one day at a time.

The Second Wind Foundation would like to thank Carol and her family for agreeing to provide us with her story. We urge others to help spread their story about Pulmonary Fibrosis. If you’re interested in helping our organization help others understand this disease, please contact us at info@secondwindforpf.com.

Register For The “Give A Gift Of Breath” Motorcycle Ride 2014

Motoride2013010
The Second Wind Foundation for Pulmonary Fibrosis is proud to announce the second annual “Give A Gift Of Breath” motorcycle ride.  

The ride is on September 13th 2014 and begins at
the Plumbers and Pipefitters Hall
161 Londonderry Turnpike, Hooksett. 

Registration begins at 8am and kickstands up at 10:30am.

The cost is $25 dollars per bike and $10 per additional rider.
All proceeds go to the Second Wind Foundation.

After the scenic ride, enjoy some great food from the Puritan Backroom 
(special thanks to Chris Pappas owner of the Puritan Backroom, for sponsoring the event).

  There will also be entertainment and fellowship.

JUST ANNOUNCED
Rik-Shaw Band will be playing after the ride! 
Click Here to read more about them. 


Bikes and Riders




2014 SW4PF Ride Flyer (PNG)

Click here to download a PDF version of this flyer
to print and share with your friends and co-workers. 

The event is now being featured at MotorcycleMonster.com

Motorcycle Rally Calendar

16 Businesses Participated in “The Second Wind Foundation For Pulmonary Fibrosis Awareness” Week

Auburn, NH — 15 businesses supported the Second Wind Foundation For Pulmonary Fibrosis by Participating this past week in our “Second Wind Foundation For Pulmonary Fibrosis Awareness” Week.  Businesses sold paper doves and displayed them in their business for the week.  The annual charity fundraiser brings in much needed funds to help support families suffering from Pulmonary Fibrosis.

Pulmonary Fibrosis is a rare lung disease that creates scar tissue inside the lungs, making it harder and harder to breathe. Right now there is no cure for Pulmonary Fibrosis, and thanks to donations from the Second Wind Foundation, new research is helping to find a cure.  Pulmonary Fibrosis effects 500,000 people in the US.

Ron and Marylou Geoffroy started the Second Wind Foundation, after Marylou was diagnosed with Pulmonary Fibrosis. They started the foundation to help raise awareness to a relatively unknown disease, and to help raise money for research.

“I am very grateful to all the businesses who supported the Second Wind Foundation by selling doves at their local business,” said Ron Geoffroy, President of the Second Wind Foundation for Pulmonary Fibrosis. “Thanks to their generous support, and continued donations, we will continue to help people who are suffering from Pulmonary Fibrosis.”

“We are pleased to announce that these businesses raised $500 dollars for the Second Wind Foundation,” continued Geoffroy. “Due the popularity and success of this event, we are already considering expanding the fundraiser to include more local businesses in the Manchester area, and making it a month long event.”

The Second Wind Foundation would like to thank all the people who donated and the businesses that helped us during the event.  We look forward to next year!

For Bruce An Interstitial Pulmonary Fibrosis Diagnosis Is Not Holding Him Back Yet

Image of Mount Monadnock by Ed Holen

Image of Mount Monadnock by Ed Holen

Bruce is a 67 year old man, who was diagnosed with Interstitial Pulmonary Fibrosis in 2012.  In 2008 Bruce found that he was having difficulty breathing during hikes that he took while working at one of his favorite hobbies, Geocaching.  If your not familiar with Geocaching, Google the term and you will see that being part of this fun, family friendly hobby relies on some physical ability.  Bruce has been doing this for over 11 years.  In 2009 Bruce went to a doctor and they performed a Pulmonary Function test.  The test showed some oxygen deficiency during exertion.  The doctor he was seeing at the time diagnosed Restrictive Lung Disease.  Restrictive and Obstructive lung disease is when you cannot either completely inhale or exhale the air from your lungs, thereby feeling short of breath.  The doctor provided him with an inhaler and suggested that would help.  It didn’t help Bruce at all.

Bruce told us about his various work life.  Bruce spent 2 years in the Navy as a welder and sheet metal worker and 11 years in the Navy Reserve. Also worked in the NH Air National Guard for another 9 years as an Air Frame repair technition. While in the Navy he experienced some type of gas poisoning from welding galvanized metals.  He was told the condition would go away and he spent a week recovering.  After the Navy, Bruce worked in the Sylvania plant here in Manchester NH, making light bulbs where he had to deal with many chemicals and gases such as silica and mercury.  After Sylvania he worked for the Elliot hospital as a HVAC technician.  Each of these jobs had some type of influence on him breathing in various gases.  This may or may not have had an impact on his disease.  There is no known cause for PF, and there are numerous and various conditions, both physical and mechanical, that possibly could have an influence in developing PF.

In 2012 Bruce reported for his yearly physical during which his doctor again suggested additional pulmonary function testing.  After his test, the pulmonologist suggested Bruce get a lung biopsy to further determine what was going on.  The biopsy results were positive for Interstitial Pulmonary Fibrosis. The physician suggested to Bruce that he get his affairs in order because he only had 3-5 years to live.  Bruce was devastated.  How could a doctor say that to someone?  Bruce went and found another doctor in the fall of 2013.  At that point Bruce was having difficulty breathing during exertion.  As you remember Bruce is a Geocaching participant and regularly has to hike to locations to find his Cache.  Bruce was finding that he was slowing down and seemed to need to stop regularly to catch his breath.  His doctor recommended that he start using oxygen during exercise to supplement his breathing.  He is presently using 3 liters during his hikes or when out in the yard doing work.

Bruce has also tried some clinical drug trials to determine if they would help.  He applied for the Ascend Trial for Pirfenidone, (click here to find out more about Pirfenidone) and the Gilead GS-6624 Trial. Both of which didn’t work out as his condition didn’t meet there needs for the trial. Bruce has recently completed an application for another clinical trial, Nintedanib, that is hoping for FDA approval.  Bruce feels that being involved in the clinical trials to determine if it would help him have a better quality of life or help to reverse or slow the progression of his condition, is something he wants to do for himself and other PF patients.

Having PF is significantly life changing to anyone but Bruce says that it has changed his life some but not slowed him down too much.  He continues his Geocaching and enjoys his time with his family and traveling.

The Second Wind Foundation would like to thank Bruce and his family for providing his story.  We urge others to help spread the word about what they live through in dealing with Pulmonary Fibrosis.  If you’re interested in telling you story to share your experience with others, please contact us at info@secondwindforpf.com.